Caregivers Link – A social venture with a vision to develop and build support, and in the long term create solutions and professional services, for persons in care situations.
We are working with and adapting Life Story methods for the benefits it offers all those involved in the process. Read about our ongoing work in Pune using Life Story processes at EKansh Trust, with young persons who are visually challenged.
Life Story work – What is it?
Care 7 days 7 stories – Online awareness, visibility and experience sharing event from December 01st to 07th, 2015. We requested 7 participants to share 7 short, micro stories, by image and a very few words, that can give us a glimpse into an aspect of their care experiences. Join us here, or through our Facebook event page for a fractional, spy-eye view into a care relationship.
Counselling (Delhi/NCR) .
Inviting interested institutions and individuals to contact us.
View a/v ‘Talking about mental health/illness‘ – A conversation with Psychiatrist Dr. Harish Shetty.
Click here to read what some of our friends and supporters have had to say and suggest.
Why Caregivers Link?
To address some of the many problems faced by those parents, partners, spouses, children, siblings and sometimes friends and extended family who take on the role of Caregiver to someone at home who needs help to lead their daily life, for long and sometimes life-long periods of time. This may be due to chronic or terminal illness, disability, or multiple other health issues.
Click here to sign up (just your name and email ID required) and join our mailing list. You are a link. And for those interested in actively participating / volunteering in network activities please do help us get to know you better – Fill in and submit the Personal Information Form so that we can get back to you and coordinate project activities or keep you in the loop of things of specific interest to you.
We are looking for volunteers with internet access from across India . Email firstname.lastname@example.org or get in touch with the team.
Link to the NEW Facebook group.
The ‘Resources’ section of this site is broadly categorised into three sections with multiple sub-sections each, covering different circumstances requiring care. One section is for the reference and use of persons who are caregivers the second section is for the use of persons who are receiving care and their caregivers, and the third section is the beginning of a listing of government bodies with schemes and interventions that could help caregivers and care receivers. There are resources that overlap between the two and have been mentioned more than once. The listing is a growing effort as we are still in the process of mapping and adding to the lists.
Take a look at a website set up by a caregiver in India on the subject of caregiving for dementia patients here.
“Isolation, a lack of resources, low energy and depression,
an inability to find a community of people willing to help me –
an increasing reluctance to leave the house or to meet other people.
People don’t like visiting the sick or the elderly,
which makes it harder for the caregiver who is often not able to leave them alone or reluctant to.
A lot of anxiety because one is so often the sole person with the patient
and scared of making a wrong decision.
A lack of helpfulness on the part of doctors and nurses.
They are inaccessible and unhelpful.”
(Asha Sen, caregiver)
“My work often takes me on out-station travel, and I fret about leaving her alone.
But she is not willing to let any governess or other help to stay at home.
She would rather depend on the neighbours.
I also have to manage all her savings and other investments
that my father had made.
She is unable to understand some of the complexities involved.
At times, all of this adds tremendously to my work related frustration, tiredness and anger.
Friends and colleagues are a help at times,
and I’m seeing someone of late,
and so there is someone to share all this with.
But all these individuals also have their own share of concerns,
including parents’ health.
So one is pretty much on one’s own most of the time.”
(Pawan Dhall, caregiver to his mom.)
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