Studies

What would make caregiving easier for you‘? A dipstick survey of caregivers to people with dementia conducted by a caregiver. The survey is still open, a simple single question survey of what people think caregivers want. Link to the survey.

Alzheimer’s and Related Disorders Society of India (ARDSI) released ‘The Dementia India Report 2010’ at its summit at New Delhi on September 20th to 21st 2010. The link to the report is on their website and you can download it here. It’s a heavy file and takes a bit of time to download. Among the findings presented in the report, some key facts are that …There are 3.7 million Indians over the age of 60 years with dementia and the numbers are expected to double by 2030; there is a higher prevalence of dementia among older women than older men; the numbers of persons with dementia in the younger age group defined as between 60 to 75 years is expected to increase over time … Families have been identified as the primary caregivers and support for such families is a key requirement. The report makes references to the 10/66 Dementia Research Group’s multicentre pilot study which included 179 caregivers from six different locations in India and it was found that most of the primary caregivers were women (75%) and the vast majority of them were co-residents (98%).

We came across a reference to a recent (2008) study on the economic effect of terminal illness in the website of palliumindia.org. You can download the full study here only if you subscribe to the journal. Otherwise the website has a short description of key elements of the study in the blog post of September 7, 2010.

A 1999 study with 50 primary caregivers of patients with chronic schizophrenia at the outpatient facility at the National Institute of Mental Health and Neurosciences in Bangalore. http://psychservices.psychiatryonline.org/cgi/content/full/53/3/346-a

A paper on psycho-oncology research in India, by Seema Mehrotra, PhD, Assistant Professor, Department of Mental Health and Social Psychology, National Institute of Mental Health and Neuro Sciences (NIMHANS), Bangalore. (2007) Makes some mention of family caregivers and professional caregivers, refers to the paucity of studies and literature on caregivers in India. http://medind.nic.in/jak/t08/i1/jakt08i1p7.pdf

2 comments

  1. admin says:

    I’m glad you’re finding some of this useful. Hard to get studies on caregivers in India. Yes will certainly contact you if and when we find some more.

  2. sunita says:

    this is a real great help. can please forward me more studies on caregivers in India. My Phd is management of dementia patients a study of family caregivers. Since i am at present working on review of literature it would be of great help. i am using the above links mentioned by you

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